Klinefelter Syndrome Association

The Klinefelter’s Syndrome Association (KSA) was formed on 21st December 1990 by parents, Sue and David Cook, and a KS/XXY adult, Steve Hammett.It was incorporated as a charity in 1996. Sue and David remained as very active trustees until 2018. All are still members.The KSA is run by trustees who make up a National Executive Committee (NEC). They are helped by non-trustee volunteers. It has no paid workers and is funded mainly through membership fees and donations.The aims of the KSA are:To offer support and information to all affected by KS/XXYTo raise awareness of KS and XXY especially amongst the medical professionTo promote research into the management of KS/XXYThe KSA vision is of universal recognition, support and understanding of KS/XXY.